Resources and Advocacy
Here are some of my favorites!
Use the contact form below or email connect@ppalearningcenter.com to inquire about joining.
Families, individuals, clinicians and students are welcome to book time during my office hours to discuss resources, practical advice, clinical mentoring or anything else related to PPA, PPAOS and FTD!
Remember Me Podcast+
I can't say enough wonderful things about these women. This is a beautiful example of community building and grassroots advocacy, to the point that I cry nearly every episode. Not because the stories are sad (though some are), but because this is what the community and the world needs. I'm inspired every day by their work.
Season 7 dives deep into genetics if an accessible and human-centered way. Season 8 explains some of the symptoms seen in FTD through personal experiences and experts from UPenn's FTD Center. Season 9 is all about grief, and Season 10 is all about family dynamics.
You can also join the Re-Members Only Space to support their work and access exclusive information.
Full Disclosure, I am the PPA Program Coordinator for the NAA. We are working on increasing our reach in the PPA & PPAOS community, and providing more resources and programs for people living with PPA & PPAOS and their families.
By far the most comprehensive organization for frontotemporal degeneration. I often refer to their resources when I'm looking for services in a particular area, webinars and advocacy opportunities.
International PPA Awareness Day
April 4, 2025 was the Inaugural International Primary Progressive Aphasia Awareness day! Thank you to Dr. Anna Volkmer and the International Speech Language Therapy/ Pathology Primary Progressive Aphasia Network for spearheading this effort! You can view the 2025 US PPA Awareness Day event on the National Aphasia Association YouTube page. We have lots more in store and expanded event options in the works for 2026!
